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September 03, 2010

Kidney Community - Other Support Resources

Here are some helpful online support resources.

Chronic Kidney Disease Websites

American Association of Kidney Patients (AAKP)
On the AAKP website (http://www.aakp.org), you can sign up for a kidney disease magazine or email newsletter.  You can download a book called Kidney Beginnings: A Patient's Guide to Living with Reduced Kidney Function.  You can also access health tracking tools and ask a doctor questions.
Healthfinder.gov
On this government site (http://www.healthfinder.gov), you can find a wide range of information on kidney disease, including its causes, symptoms, and treatment.  You can also find information on other conditions that people with kidney disease might have, like heart disease, high blood pressure, and diabetes.
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
This site (http://www.nih.gov) is part of the National Institutes of Health (NIH).  They conduct and support biomedical research, disseminating research findings and health information to the public.  They are part of the U.S. Government, under the Department of Health and Human Services (HHS), http://www.os.dhhs.gov.
Kidney School
At Kidney School (http://www.kidneyschool.org) learn what to expect and how to be an active partner in your care by choosing among sixteen 30-minute on-line modules.  Topics include how kidneys work, treatments, anemia, coping, staying active, vascular access, sexuality and fertility, and others.
Life Options Rehabilitation Program
Life Options (http://www.lifeoptions.org) is dedicated to helping people live long and live well with kidney disease.  Visit this site to read or download facts about kidney disease, risk factors, symptoms, frequently-asked questions, and how you can keep your kidneys healthy.
National Kidney Foundation (NKF) - Kidney Learning System
The NKF is a voluntary health organization with many programs to help people with kidney disease.  This link takes you to their Kidney Learning System (http://www.kidney.org/professionals/KLS/index.cfm), which focuses on chronic kidney disease.  It includes a wide range of links and information on the causes and treatment of chronic kidney disease.
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
Learn about the causes and types of kidney disease and what you can do to stay healthy at (http://kidney.niddk.nih.gov/kudiseases/pubs/choosingtreatment/index.htm).  This government site also contains information on clinical trials, data, links, and brochures.
Polycystic Kidney Research Foundation
Visit the PKD Foundation (http://www.pkdcure.org) website to learn about polycystic kidney disease.  You can use a patient message board, read tips from other kidney patients and frequently-asked questions, ask for a mailed packet of PKD information, or find a chapter near you.